Every brain injury is different and everyone's recovery journey is too. We have constructed this guide using our experience and the strategies and resources we found helpful and hope that you find this guide helpful too whether it be the entire book or just parts of it.
Who we are and how this idea came about.
How to Use this guide and customize it to your needs
What they are, how they are unique, stages of recovery
Each brain injury and person is unique. We recognize your needs will be different depending on where you're at
-Early middle late stage issues
-Severe moderate, mild issues
-Within a system vs outside of a system -(hospital, rehab program, residential care), funding system
-This guide gives you an opportunity to list your own needs and shape your own or manage your own options/supports/recovery journey
Individual stories and experiences
Bringing awareness about brain injury to family, friends, doctors and therapists and the public
Words to use and not use for example
Understanding that you are just as intelligent as you always were, just slightly less efficient
Feeling discounted vs feeling heard = regaining control, getting people to speak directly to you rather than your caregiver
What is happening in your recovery is going to guide the rest of your life and you feel like a backseat driver - others may need to give you support
What the individual can ask or consider. What the support providers need to ask. How aware am I? Do I need to do it all today. What's my priority?
What stage of recovery are you in? How aware are you of the deficits? Have you asked them recently about what they need from you?
Support to help you walk, not walk for you.
You survived the brain injury; now how do you survive the insurance industry
Help finding our what is the right and available care
Tips or guidelines for self-advocacy
Humour as a stress management tool and other strategies
Pacing and fatigue management
In this section find out more about this very critical piece in our recovery and the importance of caring for the caregivers and helping them to maintain their own health while understanding what is going on with you.